Mesothelioma affects around 2,700 people per year in the UK, the highest incidence in the world. Mesothelioma UK is a specialist resource centre providing information, support and education, improving care and treatment for all UK mesothelioma patients and their carers.
“Living Well with Meso” is a study run by Sheffield University and funded by Mesothelioma UK in association with the National Lung Cancer Forum for Nurses. It aims to look at ways in which people with pleural mesothelioma, and/or family members can suggest ways that could improve the experience of having this condition for others.
Researchers will speak to patients and their family carers, usually on the phone, and ask questions about how life has been since mesothelioma affected their lives. The researchers will look at how people have managed to cope and adapt, how priorities have altered to make the best of their situation and what positive things they have learnt to manage challenging situations.
Living with pleural mesothelioma is life changing and challenging. The interviews will be used to make positive suggestions to help other patients and family carers facing a similar situation.
If you or someone in your family has recently received a diagnosis of pleural mesothelioma (within the last six months), you may be able to take part in this research.
The research will open on June 25th 2019. If you are interested in taking part before that date please register your interest by contacting the Mesothelioma UK Helpline on 0800 169 2409 or email: firstname.lastname@example.org. They will discuss the project in more detail and pass your details on to the researchers.